first month at home.

This has been such a wonderful month - and it certainly has gone by quickly. Loads of fun - and very minimal stress - just as good as any experience we could have asked for.  As you might know, they let us finally take Elida home, a decision that was a bit questionable as she needed to be on her feeding tube until she was big enough for her G-Tube surgery.

We have watched her thrive as we hoped she would - gaining over 2 lbs, outgrowing her first set of splints as well as making great progress in her range of motion and overall gross motor movements.  That and her sweet personality is becoming more apparent as she coos and smiles with us all the time!

We have begun working with new OT and PT at Spectrum. Rosie and Robin are taking great care to get to know Elida and her needs, with appts twice a week - as she is growing so quickly. Elida now has only wrist/finger splints to wear as the "contractures" in her elbow are now completely relaxed. It is just a beautiful thing to see her sleeping with her arms at her side. The OT will continue to work with Elida to be sure we are all making strides to help her meet the appropriate developmental benchmarks... right now she is only slightly behind. The PT will continue to work on her muscle strength and loosening those muscles that continue to stay a bit tight.

Other than that, we are enjoying these last final weeks with both of us home (I will return to work the first week of August - Seth is home full time now!) I will post an update about her upcoming GTube surgery in a bit. Next week will be a big week for us all!